The focus of World Alopecia Community, Inc. is to enhance the overall well-being of those affected by all forms of alopecia, through evidence-based education, wellness activities, and community support. We want to teach people to not just live with alopecia but how to thrive. One of the best stories I’ve heard over the past few years is the story of Bridgid Dunn Weber. Diagnosed with androgenetic alopecia (AGA), Bridgid struggled for years to reverse or hide her hair loss… until one day she decided to let go and learn to thrive!
Q. At what age did you start noticing your hair loss?
I was in my early thirties. My ex husband joked that I looked like I was going bald. He thought it was funny but as the hair loss on the top of my scalp became more diffuse no one was laughing. It progressed over the course of 20 years gradually. The Ludwig scale illustration perfectly depicts how my loss progressed. I don’t have pictures of my early hair loss because I would not allow myself to be seen in public without having Toppik or Dermatch or some other concealer on my scalp. My pattern of hair loss now mirrors the illustration entitled “Type III.”
Ludwig Scale of Female Androgenetic Alopecia (AGA)
Q. What treatments did you try to stop the hair loss?
I used biotin, hair vitamins, tried Paleo and gluten-free diet (lost weight and felt great but it didn’t do a damn thing for my hair.). I tried Nioxin products, Rogaine, and spironolactone. I visited medical doctors, dermatologists, and even an endocrinologist. Read more…
One of the best things about being part of a global alopecia community is that we enjoy meeting people who also have alopecia and are learning to thrive with alopecia every day, every where in the world. For this installment, we’re visiting with Amy Johnson, the Communications/Fundraising Manager of Alopecia UK, a charity organization based in the UK whose vision is to improve the lives of those affected by alopecia.
Alopecia is something in my life, but isn’t something that should change the person I am.
Q. When were you diagnosed with alopecia areata?
I first had two small patches of Alopecia Areata in October 2007. They quickly grew back. By 2010, I had lost everything. I have experienced different degrees of patchy regrowth since 2012.
Q. How has alopecia changed you as an individual?
I’d like to think that alopecia hasn’t changed me too much. I take the approach that alopecia is something in my life, but isn’t something that should change the person I am. Saying that, it has had a BIG impact on me in that I have ended up working for an alopecia charity so I suppose you could argue it has become my life! Read more…
For Mother’s Day, we had a chance to chat with Angie who tells us what it’s like being a mother with alopecia and how she’s learned to thrive.
Q. How long have you been living with alopecia?
I have been living with alopecia since 2012. I first noticed it right in the middle of my front hairline. I also have diffuse loss all over my head that has gotten progressively worse over the years. I have been wearing wigs/hair pieces since March of 2013. I decided to “come out” about my alopecia and buzz my remaining hair in January 2016 and I currently rotate between looks – I mostly wear wigs at work, scarves or hats when out at other times, and just rock my patchy buzz cut at home. Read more…
For our third Q&A session, we had the pleasure of interviewing Trisha Repp Benzing. Please take a moment to read Trisha’s courageous journey with alopecia.
Q. When were you diagnosed?
I was diagnosed at 19. My hairdresser found a small spot on the back of my head. I went to my dr who referred me to a dermatologist. Within 30 days half of my hair was gone. I think the stress of the diagnosis increased the speed of the hair loss. I was devastated. At that age, appearance is very important. I had severe depression for a while, which didn’t help either. My friends and husband eventually helped me realize I was beautiful with or without my hair, but it was a rough time for me. Read more…
For our second Q&A session, we had the pleasure of interviewing Lu Mueller-Kaul. Please take a moment to read Lu’s courageous journey with alopecia.
Q. When did you notice your hair loss?
In the spring of 2014 I suddenly lost an eyebrow. It was the strangest thing — I looked in the mirror, and my left eyebrow was gone. I did remember that it had looked a bit thin for a few days before, but I hadn’t really paid attention. At the time, I had long dreadlocks, and kept them very neat. They were carefully divided, and where the roots were parted, you could always see the scalp.
I had not noticed that these bare spots had gotten bigger in some areas–the dreads were really hiding it well. Now I’ve seen old pictures from 2011 where there was a very clear bald spot over the right ear — but I hadn’t noticed it at all. Read more…
Valentine’s day: a day so many of us go out of our way to abundantly acknowledge, celebrate, and demonstrate love for the people in our lives.
But has it occurred to you to include yourself in that lovefest? Are you lovin’ on yourself today? Read more…
Q&A session with one of our own fitness icons, Laura Hathaway! What an amazing story of courage and determination!
Q. When were you diagnosed with Alopecia?
December 2006…No previous history of Alopecia. For about 6 months before diagnosis I was not feeling well. Run down. Wrote it off as being a busy mom of two young active kids, opened a new family business, etc. Then I was getting my hair done. My hair dresser found a round dime size spot in the back of my hair. At first I thought to myself “ok, this is a sign to slow down” but then within a week it started raining hair… from everywhere and did not stop until it all fell out. I have had Alopecia Universalis for 9 years now. Read more…