Archives for support

Meet & Greet – Long Island, NY

Join us for an evening of fun, frolic and fabulous food at Piccolo Ristorante, a family owned and operated Italian restaurant with authentic Italian cuisine and pizza conveniently located on Sunrise Highway in Bellmore. A gluten-free menu is also available. Feel free to bring a guest! Friends and family are welcome! This is a family friendly event.

Space is limited — Please reserve your plate now!

** This is a timed event so please arrive promptly. **

Ticket includes open menu appetizers, entrée and dessert, tax and gratuity. Full-service bar for a diverse selection of beer, wines, whiskey, classic and house cocktails are available but not included in the ticket price. Purchase your ticket through our online store by clicking here and reserve your spot now!

Learning to Thrive: Bridgid Dunn Weber

The focus of World Alopecia Community, Inc. is to enhance the overall well-being of those affected by all forms of alopecia, through evidence-based education, wellness activities, and community support. We want to teach people to not just live with alopecia but how to thrive. One of the best stories I’ve heard over the past few years is the story of Bridgid Dunn Weber. Diagnosed with androgenetic alopecia (AGA), Bridgid struggled for years to reverse or hide her hair loss… until one day she decided to let go and learn to thrive!

Q. At what age did you start noticing your hair loss?

I was in my early thirties. My ex husband joked that I looked like I was going bald. He thought it was funny but as the hair loss on the top of my scalp became more diffuse no one was laughing. It progressed over the course of 20 years gradually. The Ludwig scale illustration perfectly depicts how my loss progressed. I don’t have pictures of my early hair loss because I would not allow myself to be seen in public without having Toppik or Dermatch or some other concealer on my scalp. My pattern of hair loss now mirrors the illustration entitled “Type III.”

Ludwig_Scale_of_Female_Hair_Loss

Ludwig Scale of Female Androgenetic Alopecia (AGA)

Q. What treatments did you try to stop the hair loss?

I used biotin, hair vitamins, tried Paleo and gluten-free diet (lost weight and felt great but it didn’t do a damn thing for my hair.). I tried Nioxin products, Rogaine, and spironolactone. I visited medical doctors, dermatologists, and even an endocrinologist. Read more…

Family Fun Day – Picnic on The Mall

picnic logo 600Join us for a Picnic on The Mall — Bring your own food and beverages or purchase a boxed lunch at the concession stands located on The Mall. The picnic is open to adults and children.

The National Mall, a national park, is a famous 2-mile long tree-lined, pedestrian-friendly boulevard in Washington, D.C. stretching from the Capitol Building in the east to the Lincoln Memorial and Potomac River on the west. The park is home to many museums of the Smithsonian Institute, some of the best free museums in the country, as well as many famous memorials and monuments. It’s the #1 destination for visitors in the city, and receives 25 million visitors per year.

Please contact melanie@worldalopeciacommunity.org if you plan to attend for exact location to meetup.

Alopecia Areata Support Group – Manhattan, New York

Support groups are an ideal place to come talk with others about living with alopecia areata. It is a place to gain knowledge from those who have had years or even months of personal experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. The support group experience has its rewards for all who attend.

Event sponsored by National Alopecia Areata Foundation

Alopecia: My Story

Aspire to Inspire  <3

Be sure to visit and follow Marisa’s stunning Instagram feed.

Learning to Thrive Series: Amy Johnson

One of the best things about being part of a global alopecia community is that we enjoy meeting people who also have alopecia and are learning to thrive with alopecia every day, every where in the world. For this installment, we’re visiting with Amy Johnson, the Communications/Fundraising Manager of Alopecia UK, a charity organization based in the UK whose vision is to improve the lives of those affected by alopecia.

Alopecia is something in my life, but isn't something that should change the person I am.

Alopecia is something in my life, but isn’t something that should change the person I am.

Q. When were you diagnosed with alopecia areata?

I first had two small patches of Alopecia Areata in October 2007. They quickly grew back. By 2010, I had lost everything. I have experienced different degrees of patchy regrowth since 2012.

Q. How has alopecia changed you as an individual?

I’d like to think that alopecia hasn’t changed me too much. I take the approach that alopecia is something in my life, but isn’t something that should change the person I am. Saying that, it has had a BIG impact on me in that I have ended up working for an alopecia charity so I suppose you could argue it has become my life! Read more…

NYC Meet & Greet

PhotoGrid_1461029237882Join us for an evening of fun, frolic and fabulous food!  Located at the corner of Lorimer and Conselyea in central Williamsburg, The Brooklyn Star is a neighborhood bar and restaurant serving Seasonal New American cuisine, with a definitive nod to the traditions and style of the South and Southwest.

Space is limited — Please reserve your place now!

** This is a timed event so please arrive promptly. **

Ticket includes open menu, tax and gratuity. Full-service bar for a diverse selection of beer, wines, whiskey, classic and house cocktails are available but not included in the ticket price.  Purchase your ticket through our online store by clicking here and reserve your spot now!

Learning to Thrive Series: Angie Tozier Bryan

For Mother’s Day, we had a chance to chat with Angie who tells us what it’s like being a mother with alopecia and how she’s learned to thrive.

Q. How long have you been living with alopecia?

I have been living with alopecia since 2012. I first noticed it right in the middle of my front hairline. I also have diffuse loss all over my head that has gotten progressively worse over the years. I have been wearing wigs/hair pieces since March of 2013. I decided to “come out” about my alopecia and buzz my remaining hair in January 2016 and I currently rotate between looks – I mostly wear wigs at work, scarves or hats when out at other times, and just rock my patchy buzz cut at home. Read more…

Alton Towers – United Kingdom

Join Alopecia UK for their third trip to Alton Towers.

Tickets are available online. Visit the Alopecia UK website for more information.

Everything Heals

Follow us on Instagram!