Archives for alopecia universalis

Family Fun Day(s) and Meet & Greet in Washington, DC

picnic logo 600We have some fabulous events coming up in July, all happening in Washington, DC.  The first event will on July 15 from 12:00pm to 4:00pm.  Our Picnic on the Mall is a family-friendly FREE event.  Bring your own food and beverages or purchase a boxed lunch at the concession stands located on The Mall. The picnic is open to adults and children.  Visit our Events Calendar to learn more.

That evening, join us for an evening of fun, frolic and fabulous food at The Dubliner located within The Phoenix Park Hotel, just one block from the beautiful Union Station.  Dinner begins at 6:30pm and ends at 9:00pm but feel free to stay longer and listen to live music by Brian Gaffney.  The Dubliner is America’s premier Irish pub, established in 1974, serves hearty Hibernian fare including their world famous Fish’n’Chops and Irish Beef Stew.  Click here for ticket information and to reserve your seat!

A stay in Washington, DC is not complete until you have visited world’s largest museum, education, and research complex.  We will also be sponsoring a Family Fun Day on July 16 for an afternoon touring the National Air and Space Museum (one of my personal favorites and always a hit with kids!). The Smithsonian is a free museum and open to the public.  The Smithsonian’s National Air and Space Museum maintains the world’s largest and most significant collection of aviation and space artifacts, encompassing all aspects of human flight, as well as related works of art and archival materials. It operates two landmark facilities that, together, welcome more than eight million visitors a year, making it the most visited museum in the country. It also is home to the Center for Earth and Planetary Studies. Visit our Events Calendar to learn more.

We look forward to seeing you there!  Questions?  Contact melanie@worldalopeciacommunity.org.

Learning to Thrive Series: Angie Tozier Bryan

For Mother’s Day, we had a chance to chat with Angie who tells us what it’s like being a mother with alopecia and how she’s learned to thrive.

Q. How long have you been living with alopecia?

I have been living with alopecia since 2012. I first noticed it right in the middle of my front hairline. I also have diffuse loss all over my head that has gotten progressively worse over the years. I have been wearing wigs/hair pieces since March of 2013. I decided to “come out” about my alopecia and buzz my remaining hair in January 2016 and I currently rotate between looks – I mostly wear wigs at work, scarves or hats when out at other times, and just rock my patchy buzz cut at home. Read more…

Learning to Thrive Series: Trisha Repp Benzing

For our third Q&A session, we had the pleasure of interviewing Trisha Repp Benzing. Please take a moment to read Trisha’s courageous journey with alopecia.

Q. When were you diagnosed?

I was diagnosed at 19. My hairdresser found a small spot on the back of my head. I went to my dr who referred me to a dermatologist. Within 30 days half of my hair was gone. I think the stress of the diagnosis increased the speed of the hair loss. I was devastated. At that age, appearance is very important. I had severe depression for a while, which didn’t help either. My friends and husband eventually helped me realize I was beautiful with or without my hair, but it was a rough time for me. Read more…